Like all couples with the mutations, Bethan and Johnny had a one-in-four chance of having a baby with SMA. An estimated one in 40 people are SMA carriers Johnny’s stoicism wavers when he thinks ...

to cover the cost of their baby's life-saving treatment. Nine-month-old Pia, who has spinal muscular atrophy (SMA) and lives in Antwerp, requires the drug Zolgensma, which has not been approved ...