How One Woman’s Journey with a Rare Disease Motivated Her to Advocate for Herself and Others
Managing the unpredictable symptoms of indolent systemic mastocytosis prompted a search for answers and community.
Chip Chick on MSN18h
She Has A Rare Disease Called CLOVES Syndrome, And She's Sharing What Her Life Is Like
Lindsey Johnson Edwards is a PhD student, wife, and dog mom from Texas. She’s also a rare disease patient and […] ...
OG Maco’s Health: About His Flesh-Eating Disease & Death
The late ‘U Guessed It’ artist was diagnosed with a rare disease, but he died two weeks after being hospitalized for a ...
Yahoo Finance5d
Relief Therapeutics Provides Update on Potential Transaction with Renexxion
rare skin diseases, rare metabolic disorders, and rare respiratory diseases. In addition, Relief is commercializing several legacy products via licensing and distribution partners. Headquartered ...
The Advocate4d
After surviving a rare disease, Lafayette native will represent Shriner’s in Rose Parade
It started with flu-like symptoms and a "crawling sensation" under her skin, she said, but the condition quickly escalated to ...
PharmiWeb5d
Relief Therapeutics Provides Update on Potential Transaction with Renexxion
rare skin diseases, rare metabolic disorders, and rare respiratory diseases. In addition, Relief is commercializing several legacy products via licensing and distribution partners. Headquartered in ...
The Malta Independent3d
Rare metals: The hidden health benefits unveiled
In the quest for health and longevity, humanity has scoured the earth for resources, sometimes overlooking the smallest yet most potent elements. Rare metals, often overshadowed by more common ...
Teenage girl with the bodily age of 152 years old dies aged 19 due to rare condition
A girl with a very rare genetic condition which causes rapid bodily aging has died at the age of 19 in South Africa.